
The number of people banking their newborn baby’s cord blood is on the rise, as parents hope the stem cells within the blood could be used to treat their child should they develop a disease later in life. We’ve looked at the evidence behind cord blood banking, but what is the experience actually like?
Alan* and his wife decided to privately store their son’s cord blood when he was born in 2005. “We thought, if we are ever going to need this, we’re really going to need it,” says Alan. “We thought, let’s just go for it.”
The couple had heard about cord blood banking, and had seen leaflets from cord blood banks in their local hospital. “At the time, there was a lot of excitement surrounding stem cells,” says Alan. “We’d thought we’d err on the side of the potential for the future.”
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That potential was worth the one-off fee of £2000 for Alan and his wife. “We had to think carefully about spending that money,” says Alan. “It’s expensive, we didn’t know if we would end up using the cord blood.”
Eleven years later, Alan did want to try using the stored blood. The couple’s son developed a heart condition called dilated cardiomyopathy, which leaves the heart unable to function properly.
“I had read about the possibility of treating his condition with stem cells,” says Alan. “But a clinical trial of stem cells for his condition had been carried out a few years before, and found that it didn’t work, so the hospital that was treating him had no interest in using his cord blood. He ended up having a heart transplant.”
Alan doesn’t know whether his son, or any other members of his family, will ever use the banked cord blood. “It seems that the conditions cord blood could be used for are limited and rare,” he says. “We found ourselves in an extreme situation that we’d never imagined, and found out that we couldn’t use it. If forced, I would probably say that we wouldn’t go for it again.”
*Not his real name