
Last week, Google announced its latest foray into health care â an ambitious project to collect vast amounts of health data from 10,000 volunteers. The companyâs health spinout Verily describes its Project Baseline as âan effort to map human healthâ.
People have been mapping human health by collecting data from volunteers for decades, but Google is billing its version as a step change. Thatâs largely down to the addition of snazzy new technologies that Verily will use to track the study participants: with more frequent and reliable data, the company says it will be able to draw conclusions no one has.
But is this simply a techno-fetishisation? And worse, could the vaunted technology even get in the way?
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Along with a range of medical scans, genome sequencing and gut microbiome analysis, every participant in Project Baseline will be given a Study Watch, worn on the wrist to measure movements, skin conductance, heart rate and rhythm, as well as a separate device that will be in their bed, monitoring their sleep.
Self-reporting pitfalls
This approach is very different from how major studies have been done over the past few decades. The Framingham Heart Study â which has so far included 15,000 people across three generations and helped us understand how smoking and cholesterol, among other things, contribute to heart disease â involves medical testing every two years and interviews on lifestyle.
The â launched in 1993 to investigate health issues in postmenopausal women, recruiting 161,000 participants â required dietary changes and supplements benchmarked by medical tests and reporting on habits.
Self-reporting is notoriously fraught though and can yield unreliable data because people omit information they may deem unimportant or embarrassing, or just plain forget.
Although the new study will also include self-reporting, via an app that will send periodic questionnaires, itâs fair to say that Google is putting its faith in the tech.
ÌęTech teething problems
ÌęJudging by the tech thatâs already out there, that might be unwise. There are plenty of gadgets that offer to measure every step you take, every beat of your heart, and how much you sweat. Their developers have been promising that they will make huge contributions to healthcare research ever since the devices were launched.
They havenât yet, because these trackers arenât too reliable â consumer wearables arenât made for clinical trials, and most for the collection of clinical data. Even clinical-grade devices can of how much exercise someone has done.
Itâs not just about the devices themselves â itâs also our ability to use them consistently. A 2014 survey of some 6000 US adults who bought wearable fitness trackers found that within six months of buying them.
Itâs all well and good to celebrate the transition from self-reporting.Ìę But itâs important to acknowledge that wearing a tracker wonât entirely bypass other concerns about human nature.
No specific goal
The use of health-tracking devices in medical research can also mean more work for study participants. Project Baseline is scheduled to run for four years â can 10,000 people really be relied on to use a smart watch and sleep tracker every day for that period? To consistently keep their device charged?
Google told żìĂš¶ÌÊÓÆ” that it has built the watches specifically with these in mind, giving it a battery than only needs charging once a week, and an unobtrusive profile. The company worked with consumers and researchers, and says âwe have conducted a long-term study with wearable users so we can get feedback on what impacts user complianceâ.
Beyond the usual privacy and security risks, will the shiny technology really yield new insights? Particularly when Verilyâs effort is not concentrated around a specific research goal?
The Framingham Heart Study specifically set out to identify factors that cause cardiovascular disease, while the Womenâs Health Initiative trialled the effects of hormone replacement therapy, dietary changes and vitamin supplements on the health of postmenopausal women.
The team behind the Verily project says it is looking for clues that might link specific health factors or behaviours to diseases like heart disease or cancer, potentially helping us to develop ways to predict these diseases, and treat them earlier on.
Lost billions
But this approach has gone wrong before. The US National Childrenâs study â meant to follow the progress of 100,000 children for 21 years â fell apart 15 years and $1.3 billion in, when it became clear that .
Getting a huge glut data, but without guiding principles could lead to false correlations. It would be really difficult to find trends if you didnât know what you were looking for, says Lukasz Piwek at the University of Bath in the UK. Given how much data Verily will be collecting, without having a specific research question or starting point on what to look for, this could turn out to be a needle-in-a-haystack exercise. Such data-mining approaches to medical research will need sophisticated algorithms to search for patterns before they can be useful.
Human health is not the same as online browsing behaviour â itâs a lot more complicated and needs its own set of algorithms to decipher. Data is a valuable resource, but prospective studies tend to be better than retrospective ones, because youâre collecting all the info you need.
Google sidesteps this by saying âOne of the key features of the work weâre doing with Project Baseline is developing a data infrastructure for multi-dimensional data sets so that we can use it as a single query source. This has not been done before.â
ÌęIf this approach is to work, Google will need a much larger pools of participants to get results. ÌęThey have preliminary plans to run it for longer if successful, but nothing concrete as yet.
Googleâs latest foray into health isnât surprising. Why wouldnât the worldâs most successful search engine â which can already use a personâs browsing history to reveal their interests, whereabouts, habits and beliefs â reach out for even more data? And with the goal of solving some of our most pressing health problems, who could fault them? This time, however, Google may not provide the answers.
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